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March 8, 2020 at 3:33 PM #26968
cattydoll
ParticipantHey!
Our stories are so similar it’s scary! I was raped at age 15 as well, multiple times. And now I am 20, so we are very close in age (especially if you were born in 2000 as your username suggests, I was as well and just turned 20 in January). I was diagnosed when I was 19 with vaginismus and chronic pelvic pain. (Hips, lower back, groin, everywhere)I struggle to relax any sort of muscles “down there”…I struggle to use the restroom as well. I also have a lot of scar tissues but it’s never been addressed.
I’ve been going to pelvic floor physical therapy to address all these issues twice a week for over half a year now and was just sort of booted because “there isn’t much else they can do for me”. Which stinks, but I also can understand…so I definitely understand feeling the hopelessness, as I’m currently feeling this way after being kicked from PT. I am now looking for pelvic pain specialist drs and my physical therapist suggested vaginal Valium or Botox for me, though, she has a doctorate (DPT), she cant prescribe anything as she’s not a MD. So I will be searching for one. The thought of dilators scare me too! Just the internal work in physical therapy I went through was so anxiety-inducing.
Hang in there, though. From my understanding vaginismus is more common than we think, but nobody talks about it because vaginal pain is just kind of brushed over as “normal”…I went almost 5 years thinking my pain was normal until I casually mentioned to my primary care doc that I couldn’t use a tampon, like it wasn’t a big deal. Well it was a big deal! Get in those stirrups and bam! I have vaginismus! LOL.
There’s a lot of great women on this forum and a lot of success stories as well. Don’t lose hope, we’re all in this together <3June 19, 2019 at 4:10 PM #25182cattydoll
ParticipantHey Gem! I’m seconding the coco oil. Personally doing some deep breathing and exhaling while inserting a tampon has helped me be able to get it in a bit deeper. I do think you should feel it if it’s in deep enough ad I have the same issue of not putting it in far enough…my body literally pushes the tampon out. (I once had a horrific experience of losing a tampon at a restaurant because my vagina did NOT like it in there)
But again, that only happens if it’s not in deep enough. I believe in you! Don’t push yourself, though! Keep going girl!June 19, 2019 at 4:03 PM #25181cattydoll
ParticipantI see my PT this week and I’ve definitely need to discuss a few things with her…after seeing her and doing some relaxing pelvic floor exercises I ended up actually having an accident (something that hasn’t happened since I was hospitalized for colitis). And then I made the horrible choice of slight penetration when things got steamy between me and my bf and have been in awful pain for 3 days and also not able to go to the bathroom. Today I decided to persevere through the pain and do my exercises my PT gave me. And guess what? I went to the bathroom for the first time in 3 days!!
I’m convinced this is all related for sure now
But i’ll definitely be speaking with both my PT and docs about it, I’ll keep you posted!June 15, 2019 at 3:38 PM #25163cattydoll
ParticipantAre you still looking for folks to share their story? I’m new to all this but I’d love to share my experience and what I know thus far from a newcomers perspective
June 15, 2019 at 2:50 PM #25161cattydoll
ParticipantHi all
I’m Caroline and I’m 19, I’m new to the forum.
I was recently diagnosed with vaginismus after years of not knowing what was wrong with me. Some days are worse than others with pain and tolerance, but I’m sometimes able to use tampons. I sometimes have sex as well but I always regret it because of the pain during and afterwards.
I’m currently working with a pelvic floor PT and I’m working on a lot physically. In addition I’m also working not pushing myself to have sex and saying “no” when necessary.
I’m hoping this forum helps me feel less alone. I’ve never even heard of Botox or some of the other methods of treatment mentioned on this forum so I obviously still have a lot to learn.
I do feel isolated and weird a lot, especially with my age. I also am finding that vaginismus is probably more common than one would think, but frequently not diagnosed or talked about. So I’m here with my diagnosis and to talk about it.
Looking forward to learning with and supporting all
Love and light xo
-Caroline -
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