[21withV]

Freya.a,

I have also had the procedure a second time now, with the same doctor (not at the Maze Clinic) and it has been very successful. I have been able to have sex and dilating is going wonderfully. If you are thinking of doing the procedure with a doctor outside of the maze clinic like I did, bring in one of Dr. Pacik’s clinical articles and ask them to replicate the procedure. Doing it the second time around and waking up with the dilator has made more difference for me than the Botox I believe, though it has given me an extra boost. My doctor was great and was very intrigued by Dr. Pacik’s methods and followed it to a tee. I don’t think Botox by itself is really enough if you haven’t had a lot of success dilating prior to getting the injections. If you have any questions please let me know.

[21withV]

Sks823 & everyone else!-

Dilating has gone great! I have been able to have successful intercourse 3 times, but it is definitely a learning curve. The first time we attempted was horribly painful, but the 3 times after that were actually pleasurable! I haven’t dilated with the 6th dilator yet, and I think being able to use that one comfortable would help significantly with comfort during sex. Finding the right position is hard. Woman on top has worked the best, but we were able to do doggie style once as well. I find it interesting that I can dilate basically in missionary position but it is the most painful by far for sex for me. Any other suggestions for positions that don’t hurt?? I sleep with the 5th dilator every night and try to dilate with it for two hours before going to sleep. Some days I feel extra sore so I sleep with the 4th one, and it is always better the next day.

If you are thinking of doing the procedure with a doctor outside of the maze clinic, bring in one of Dr. Pacik’s clinical articles and ask them to replicate the procedure. Doing it the second time around and waking up with the dilator has made more difference for me than the Botox I believe, though it has given me an extra boost. My doctor was great and was very intrigued by Dr. Pacik’s methods and followed it to a tee. I don’t think Botox by itself is really enough if you haven’t had a lot of success dilating prior to getting the injections. Best of luck to everyone! Thanks for following up with me, sending love & hope to all suffering from this condition!

[21withV]

Thank you so much for your thoughtful response and for the encouragement! I always appreciate it. I agree that PT would be best after the Botox treatment. Thank you for your tips on dilating. I definitely know it’s something I should still be working on in the meantime, even if I’m impatient with the results. And thank you for the link as well! I’m curious to see what others have to say! Best of luck to you!

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