Hi Melissa. While I have not experienced this, I found the following:
“Pelvic floor muscle tension or pain may occur in the anatomical sling of muscles which support the bladder, uterus and rectum. It can be caused by muscle imbalances, nerve or joint problems, scar tissue from surgery, childbirth, endometriosis or after radiation. Pelvic pain can also be caused by hemorrhoids, anal fissures, organ prolapse or constipation. One who suffers from pelvic floor pain/tension may experience painful intercourse, difficulty sitting, pain in the buttocks, hips, lower abdomen or low back. Imbalances in the muscles surrounding the pelvis can cause Vulvar Vestibulitis, Vulvodynia, Interstitial Cystitis or Vaginismus.”
I am so sorry that you are experiencing this. I suffered from primary vaginismus for 11+ years and had the Botox treatment program in 2011. This treatment worked for me when so many other things that I tried (i.e. PT, dilating alone, etc.) did not. Dr. Pacik is seriously amazing and his staff are as well and, so importantly, they not only care very much about you as the patient but they all understand what each of us goes through with vaginismus. Please know we are all here to support you. :):):)