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I had my procedure in June of 2017. I had never been able to even insert a finger, Q-tip, tampon, etc. and my husband could not penetrate me. The pain-fear cycle was so intense that attempting any insertion would nearly make me faint, but I kept desperately trying anyway.
I was very diligent with the dilators post-procedure, and was thrilled when we were able to begin having intercourse a couple of months later, and with only minimal discomfort (mostly just from certain positions or from thrusting). However, I still had to take things very slowly, maintain a lot of control, and could not find pleasure in any type of thrusting motion. I was thrilled to be able to have intercourse though and that I could even climax during it.
Fast forward a year and a half post-procedure, and I had my first child. I had a completely unmedicated birth (minus a tiny dose of lidocaine injected at the entry muscles after a long pushing phase to help those muscles relax for the final couple of pushes when I was running out of steam at the end). My son weighed 9lbs and had a head circumference in the 97th percentile at birth, and I was able to push him out without any hindrance from vaginismus! I was a bit concerned about secondary vaginismus, but my husband and I resumed intercourse as soon as I had clearance…and it has felt 10x more amazing for me than it did previously!! There is zero discomfort in any position or from any level of thrusting, I no longer have to be in control of insertion, and I am able to climax so much more easily now that things go so smoothly.I was so discouraged prior to the procedure. The procedure, follow-up support from Maze, and dilation enabled things that seemed completely out of reach after so much effort on my own.
I hope I can be an encouragement to others. And if anyone has a desire to have an unmedicated birth after vaginismus, it’s completely doable! I also met with a pelvic floor PT a few times during pregnancy, which was helpful to boost my confidence that I knew how to work those muscles for birth.
Topic: Treatment Elsewhere
Hi all,
I am 21 years old and found out about my diagnosis when I was 18. I went to PT for one year and tried to dilate on my own unsuccessfully with liquid and gel lidocaine and buckets of lube. I have also done talk therapy and yoga and massage. I’ve also had a laser treatment for vestibulitis as well. I have also had doctors tell me at age 18 to loosen up and drink wine (Oh what we go through to figure out our bodies!)
I recently underwent a Botox procedure under anesthesia a month and a half ago. It appears that the Botox has already worn off, and I waited too long to get started dilating due to fear of failure (ironic how that fear of failure actually brings about failure LOL). I moved up maybe to the 3rd dilator (Pure Romance set) but couldn’t get anything in further than 3 inches even when Botox was active. Now nothing will go in and the muscles are rock hard & I just end in tears with each session. I also feel myself clenching throughout the day and it seems to be a stress response (can anyone relate?!)
Anyway I will most likely be having this procedure again, but this time I will be asking my gyn to inject me with lidocaine, do progressive dilation, and wake up with the largest dilator inside. Is there a place I can find what the dilating schedule is like directly after the procedure? I’m wondering if my deeper muscles inside need Botox too? Do you ladies recommended that I go to my PT maybe the first few days after the Botox and the following weeks? I would love to do the MAZE procedure but can’t afford it on a college student’s budget when I live cross country, and my gyn has offered to do it much cheaper. If this procedure and plan doesn’t work, I think coming to MAZE will be my last resort 😪
Thanks for any help! Much love to everyone suffering through this trying issue 💓💜
Topic: Burning sensation
Hi there,
So I’m new to the forum and need a little guidance.
I’ve done Botox injections (not with Dr Pacik but here in Australia).
I am using the Femmax dilators (pink, rounded head) and am at size 3 (I think this is equivalent to a size 5 in the glass trainers).
So I’m almost there. I’ve been going to physio after surgery and this has been extremely helpful. She has gotten me to do active pull down stretches with each progressive size (that means put dilator in, contract muscles,big release and pull down). I’ve found this to be super helpful to stretch out the muscles as static dilation or just leaving it in there didn’t prepare me mentally enough.
I wanted to ask though, I’m now on size 3 so I’ll do the stretches with size 2 and insert 3. I’m now attempting to do the pull down stretches with 3 and although I can pull down, when th dilator comes back up, I start to feel this burning sensation and today just got painful so I took it out. I use olive oil for lubricant which has been great but need some tips/advice? Should I leave the size 3 in for longer before attempting the stretches?
Argh, this vabinismus thing can be a real pain sometimes…Hi all. I came across an absolutely awesome thread on Reddit that describes a women’s success story of overcoming vaginismus this past December with the Botox treatment program at Maze Women’s Sexual Health. It’s such a great thread to read:
https://www.reddit.com/r/vaginismus/comments/4dzjjm/botox_cured_my_vaginismus/
Excerpts include:
“For me, the experience was AMAZING! I wish I had done it earlier, but at the same time, I did it when I was ready, so I have no regrets. I went to a place in NY state, I’ll post the link below, and they were so kind and easy to talk to. It’s a day procedure, I live out of state so I stayed at a hotel the night before. The day of, we went to the place where they do the procedure, it’s like any basic medical thing, they get you ready, give you a gown, you pee in a cup, etc. The anesthesiologist comes in and gives you an IV, and then they put you under. While you’re under (about 30 minutes or so), they numb the area, give you a pap exam, and inject Botox into the muscles. Even though you’re under, they can see the muscles spasm or tighten and also if you have a hymen, they will cut it (this causes a small amount of bleeding, like you wear a pad for a couple of days, but no pain). For me, I woke up and the largest dilator from the Pure Romance set was inside of me. This was a huge thing because I hadn’t even been able to get the smallest one in on my own before. I was numb down there, so while they taught me to insert it in and out and all that, I couldn’t feel any discomfort. They did have to cut my hymen and there was some blood, nothing scary and no pain at all. They sent me home soon after with #4 inside. They want you to keep #4 in as much as possible, even sleep with it in that night. The numbness wore off around 8:00 that night, but it was still super easy to get the dilator in and out. It took me some time to find exactly the way to guide it in, the best way to sit or lay while doing that, but once I could do it, it was in within seconds and then I was fine. I went in the next day for a follow up, they do a basic exam, no inserting anything, just looking at the area and then talk more about dilation. They gave me a prescription for lube that has lidocaine in it, but I’ve barely used it. They give you a paper with info about dilation at home, they recommend trying to do it 30 minutes a day, I would do about 15 minutes with one size, then change to the next size up. Within 2 weeks I was using the largest dilator on it’s own without the need for a “warm up” and there was no pain, no resistance, that feeling of hitting a wall was completely gone.”
How can I overcome if I’m terrified of even the thought of dilators?
I was absolutely terrified of every aspect of dilating prior to my procedure with Dr. Pacik. In fact, because of this fear, I almost asked my husband to turn around on our trip up to NH. Until I went through with it, I just could never envision being successful with the dilators as I had never been able to even insert a q-tip. I couldn’t have been more wrong and was able to successfully dilate post-procedure. What helped me so much personally was waking up with the dilator in place and, later, being able to insert as I did not experience the normal wall of resistance that I always had as the Botox took effect.
Dr. Pacik addresses this very question as well and writes:
“Most women with severe vaginismus and severe painful sex are unable to use dilators on their own. During the treatment with Botox under anesthesia, a long acting anesthetic is injected so that the entire vagina is numbed for about eight to twelve hours. By the time the patient returns the next morning, having maintained a dilator for 24 hours, the vaginal muscles are sufficiently stretched that dilation to the larger dilators is easy and not painful. During this time a topical anesthetic is used to coat the dilator and this adds to the comfort of post procedure dilation. Later, patients are able to continue their dilation program easily without the need for topical anesthesia.”