May 16, 2017 at 5:41 pm #20969
Nicole Tammelleo, MA, LCSWModerator
It still amazes me how little is understood about vaginimus. The internet does have a fair amount of information, but I think what is not happening is that people are not speaking about it. Unless you actually hear someone speak about it as “real thing” you might be skeptical that it exists. We all know by now that everything you read on the internet can’t be true, so hearing about vaginimus from a friend or trusted person is one of the best ways or educating others. Even just a casual conversation with someone about it might help spread the word and provide advocacy that you do not even realize you a doing.May 18, 2017 at 4:46 pm #20970
So true, Nicole. People still think it’s this rare thing, not realizing that odds are they know someone who has it. You make an important point about how advocacy doesn’t have to be loud. it can start with just some small conversations that teach people about the condition.May 21, 2017 at 12:47 pm #20974
I definitely wish I had heard people talking about vaginismus when I was younger, or that I heard about it now. The internet has helped more information become accessible, but it is still far from having a place in the larger cultural conversation. It’s not something we see in books, on TV, in movies… makes it harder to talk about. I wish there were more ways to start the conversation beyond talking about one’s own experience. Any advice on how to get the word out there from anyone is greatly appreciated!August 24, 2017 at 3:42 pm #21759
I have seen more articles in women’s magazines about vaginismus– reach out to see if they would be willing to interview someone who had it so they could write a piece on it that includes the human aspect to it, not just the WebMD side of it.August 24, 2017 at 3:42 pm #21760
I have seen more articles in women’s magazines about vaginismus– reach out to see if they would be willing to interview someone who had it so they could write a piece on it that includes the human aspect to it, not just the WebMD side of it.August 24, 2017 at 4:29 pm #21761
Aimee Goldman, RWHNPMember
I have seen a gradual increase in Vaginismus awareness. Many of the referrals I get at Maze are from primary gynecologists who are familiar with Vaginismus but unsure how to treat it. I am optimistic that in time Vaginismus will no longer be an enigma in the medical community.
Maybe physicians are being trained about Vaginismus in medical school or during residency. In the meantime, continue to talk about Vaginismus openly and honestly. Get the word out that it can be treated and that no one should have to suffer in silence.November 16, 2017 at 9:16 pm #22101
Hi Aimee. You wrote: “Many of the referrals I get at Maze are from primary gynecologists who are familiar with Vaginismus but unsure how to treat it.” I think it is beyond awesome that gynecologists are finally becoming familiar with it and this, alone, speaks volumes and gives me hope that less and less patients will go and see a doctor who tells them to “just relax” which so many of us have heard.May 11, 2019 at 10:08 pm #25041
I think that a lot of my depression, anxiety and addiction to debt/shopping has more to do with this condition then the doctors realize. I try everything for my mental health and my vagina is more of a problem then I ever imagined. I feel a little hopeful that I can get this (and more) problem resolved.
I wish my GYN’s and therapists had told me that vaginismus was an actual thing. For 46 years I have been suffering and I was beginning to think I was too old and I was going to die before I could have pain free sex or even less pain for a pap smear.May 16, 2019 at 4:16 pm #25057
Hello! My name is Marina and I was treated for vaginismus two years ago. After my treatment, I made the decision to be open about my vaginismus, and talk to as many women and men as possible about it. As we all know, female sexual pain is still treated like a taboo and this social stigma prevents hundreds of women from getting proper treatment. Vaginismus is still a big part of my life and I am interested in developing a project about the female experience with sexual pain. I would love to talk, listen to your stories, and also share my own. So if any of you is interested in voicing your opinion and/or experience please let me know.
You can contact me on:
firstname.lastname@example.orgMay 17, 2019 at 2:47 pm #25060
Leslie Turner, WHNP, CNMModerator
I applaud you for your decision to share your experience with vaginismus. Yes, far too many suffer from painful sex in silence. If women felt that they could open up about it and be supported, many more women would seek treatment.May 21, 2019 at 10:08 am #25072
Marina, I think this is the thing we can do – make this subject easier to talk about and more well known so less women suffer in silence for years without understanding what’s going on. It’s disgraceful that almost all of our vaginismus stories start with long periods of wondering if we’re the only ones out there suffering when this issue is treatable and understood by so many swaths of women. It’s great that you want to continue spreading awareness – what will the focus of your project be?
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