Vaginismus at 21

Find support and treatment options from participants and Maze Women’s Health staff.

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  • #67941
    GGC_22
    Participant

    Hi guys,
    I’m new here. I just found this forum and am really struggling with this part of my life right now so I thought I’d come on here to get some advice. I’ve had vaginismus for a very long time. I think the cause stems from some early childhood sexual abuse. I remember being 12, just got my period and having panic attacks so bad about putting tampons in I would pass out. I’ve started my sexual abuse healing journey in October of 2022 and have made great progress. I’ve been in pelvic floor therapy since June 2021 and started using dilators in June 2022.
    Since the dilator use, I feel like I’ve made some progress. I’ve gone from having panic attacks in the parking lot of my pelvic floor therapy clinic before even walking in to using the size 1 dilator about 3/4 of the way in. But I’ve recently had some setbacks. I just broke up with my long-term partner because I thought that being by myself might help me further progress. He’s been a great support these last few years but I was feeling like I was plateauing in my dilator progress. Our sex life has been non-existent the past couple of years because anything physically intimate reminds me of how I am broken. So I decided to end things for the time being.
    Since this, I have been having panic attacks as I start my breathing process before even inserting the dilator. This has set me back physically and mentally. I am having recurring thoughts that I am broken, that I will never fix this problem and even suicidal thoughts that this pain will last forever.
    I have a great physical therapist who has been so informative and encouraged me every step of the way. I’m also currently seeing a mental health counselor who specializes in sexual health. I feel like I have all the right people on my side and it’s my fault I’m not progressing. I’m just not sure what to do anymore. I feel like these past few panic attacks have set me back to even worse than when I first started.
    Any advice?

    #68306
    recessivegenequeen
    Participant

    GGC_22 – I am so sorry for all that you have been through because I know how hard so much of this can be. I dealt with vaginismus for 9 years before finally getting treatment that worked for me long-term and those years were littered with self-loathing, shame, pain, and guilt. I say all this to let you know that as hard as it might be to believe, those emotions can become part of your past if you have the right type of treatment. This phase of your life might have felt endless, but it CAN just be a phase.

    The thing that finally worked for me was the botox treatment offered at the Maze clinic, and I think you’d be a great candidate for something like that. It sounds like you have a great care team on your side but that your progress has plateaued – you might just be someone with a more serious case who needs additional care and help. I highly recommend you research the procedure more here on the Maze website and give them a free call just to discuss your options. Also, I hope you’ll give yourself grace for the fact that your breakup is bound to have emotional effects that are making this harder on you. Don’t give up – so many women have overcome this condition and you can too!

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