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  • #28158
    Bookworm
    Participant

    Hi there!

    I have had vaginismus my entire life. I’ve never been able to use tampons, and I have dealt with anxiety/OCD since I was a child. I always believed in sex after marriage, but I think it was just my way of coping with my fear. I only dated one person, who is now my husband. We’ve been together almost ten years, and he is the most supportive man I know. I love him and want to be with him, but my body literally won’t let me.

    Within the last six months, I started seeing a regular therapist and a pelvic floor therapist. I’m taking Prozac now, which is helping with my anxiety, and I’ve been slowly working with the physical therapist on ways to retrain my muscles. Obviously, with the virus, everything is basically on hold. The reason I am pursuing therapy is that my husband and I would like to start a family. I don’t know what that looks like with vaginismus. Is it possible to get pregnant and give birth without being completely ‘cured’? My OCD and anxiety have been a part of me for so long that I feel like it will take decades for me to change them, and fertility wise, I don’t have that time.

    So I guess I’m wondering what a timeline looks like for treatment. Is there anyone else with vaginismus who is also dealing with OCD? Sometimes, it makes me feel so alone. I’m grateful my husband has the compassion that he does.

    #28306
    mmmazemelissa
    Moderator

    Hi Bookworm,

    Welcome to the forum, so glad you found us, and we are here for you!

    Vaginismus and anxiety often go hand in hand. The fear/panic of penetration with vaginismus, is a manifestation of anxiety, your body’s involuntary response to shut down with any attempted penetration.

    That anxiety component can be mild to severe. So depending on the severity, that often determines the time line for treatment.

    You are on the right track with treatment. It is so important to deal with the anxiety (therapy and medication) as well as the physical aspect of the vaginal/pelvic floor muscle spasms (physical therapy and dilation).

    If you are able to dilate, than your timeline will be shorter, than if you still haven’t been able to do any dilation. Vaginismus treatment is usually slow and steady, more like a long distance run than a sprint. The key component is consistency of treatment.

    Often patients seek treatment out of their desire to start a family, so I am sure there are many women out there who can relate. You asked if it is possible to get pregnant and give birth without being completely cured? And my answer to that is yes. Pregnancy is possible with partial penetration of the penis, as long as he ejaculates inside the vagina, even near the vaginal entrance, and sperm can swim and enter the uterus. Of course this is not ideal, and we hope all of our patients will be able to have full penetrative pain free intercourse in order to conceive. But you could get pregnant if you aren’t at that stage.

    Continue your medications, therapy and home dilation program and physical therapy exercises . Go at your timeline, everyone is different.

    And if you feel stuck, and you are not progressing, make sure to reach out to us at Maze, we are here to help!

    Melissa

    #28350
    mmHelen Leff, LCSW
    Moderator

    Hi Bookworm,
    I echo all that Melissa has said and I hope it resonates with you. You sound like a strong, honest, persevering woman. One of the things you wrote struck me and that is that “things are on hold”. They don’t have to be. If you have been dilating with pelvic floor PT that is something you can continue to do at home and we are here to help – I understand it’s challenging and want you to know there are options. So glad you found the forum and know that you can overcome vaginismus and treat your OCD because you are doing it!

    #29025
    recessivegenequeenrecessivegenequeen
    Participant

    Hi Bookworm – your story really resonates with me and I hope that you are keeping well now with all the anxiety that’s out in the world because of the coronavirus. I struggled with vaginismus for about a decade and found that external stresses like being in college or having difficult times at work would make it extra hard for me to even open myself up to the idea of seeking treatment for vaginismus, but the thing I know now is that you may never feel “ready” to get treated, but that doesn’t stop you from deciding that it’s time. I sought treatment after so many years because a new partner made it clear that sex in a relationship was important to him, and that was the impetus to do what I needed to get the help that would eventually fix me.

    It’s okay to feel like you don’t know how you’ll do this, because you’ll have help. It’s okay if it feels like a huge undertaking because you only have to handle it one day at a time. The days add into a result if you let them.

    Let us know if you have questions along the way. I know you can do this and we are always here to help you!

    #31057
    MotivatedMumma
    Participant

    Bookworm.
    I was in your position- you NEED to look up Mosie Baby Syringe.

    I was able to have my two children through this product, and at that point I was only able to insert a tampon size dilator.

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