Thanks for the reply! So I actually really don’t have an issue with my largest dilator, and I can sometimes have pain free PIV. I’ve never had the fear I’ve read about in other patients, I was always able to have intercourse it was just painful. Things have definitely calmed down, but I have all these painful spots that just don’t seem to be getting better with the dilator. PT has been helping a little especially in things not getting worse, but doesn’t really seem to be moving in a better direction.
I’m curious about Botox in someone like me, where I don’t have the fear or inability to penetrate, but maybe breaking the pain cycle in my brain could help my muscles learn to stay relaxed as a natural state? I just haven’t found similar experiences to mine so it’s hard to know what next steps I should explore.